Friday, August 15th, 2008 by Deb Schwedhelm
as most probably know, max is going through two weeks of daily IV chemotherapy right now, so chemotherapy infusion is what i shot yesterday. when i arrived, the chemotherapy hadn’t been delivered yet. max was laying in bed, watching TV.
i noticed right away that max was wearing his hearing aids. i hadn’t seen them on him in quite a while. melis told me that she’s getting max used to them again because he needs to wear them in school, which starts on the 28th.
then the chemo arrived, in a special bag labeled CAUTION: Chemotherapy Drug. the nurse mentioned why she didn’t have to gown and mask (only gloves) with max’s chemotherapy (i can’t remember why). melis joked with the nurse about how she often gets asked whether or not she has enough gloves at home, for when she gives max his oral chemo. melis said it’s a joke to think that she’s not going to touch a pill with her hands, that she is willing to put in her child’s body.
the nurse laid the tubing over max’s shoulder and he spent a little time inspecting it. they had already accessed his portacath, so it was basically just connecting the two tubings together.
once the chemo was connected, the rate was set on the infusion pump and chemo began.
after the chemo was started, it was time for melis to do her thing…get max’s food ready and his g-tube connected.
mom told max that his TV time was up and asked max if he wanted to finish building his star wars ship. and so together, they began working.
when i was driving to shoot max yesterday, i was thinking…more of the same photos of max in the infusion room. i hope the readers don’t get bored with these. and then i thought, this isn’t about me. this isn’t for the reader. this is for and about max and what he’s going through…the every day reality of a boy and his battle against neuroblastoma. and right now, the infusion room is a huge part of max’s life. this is the reality of needing platelets and/or red blood cells almost every day and getting IV chemotherapy. this, the infusion room…is max’s home away from home right now.
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