Monday, August 25th, 2008 by Deb Schwedhelm
Today was Max’s first day of 2nd grade. I arrived at the Mikulak’s house this morning, to find Max playing a game on the computer. It was so nice to see him in a good mood, with an occasional smile when something good happened in the game. Big sister, Hannah, was standing behind Max, cheering him on. However, one thing that Max doesn’t like right now is people talking to him and that basically means everyone, including Hannah. So Dad asked Hannah not to say anything because they wanted Max to stay in a good mood for school. Again, the medicine that Max is taking makes him very moody…not by choice.
Then Mom told Max it was time for his medicine, and she put a syringe full of a blue liquid next to him. Max wasn’t bothered by this…a simple okay. Max waited till break time was good with the game and quickly lifted his shirt and injected the medicine into his g-tube. The one thing that did bother Max was Hannah watching. Apparently Hannah is not allowed to watch these types of things and Max gets very upset when she does. So Hannah left and came back when Max was done.
Then it was time to get Max’s hearing aids on, put the computer away (with the promise that it would be paused and not shut down) and finish getting ready for school.
We arrived at the school a bit early, to avoid the traffic and crowds.
All the kids wait in line, on their assigned classroom number. Max has the same wonderful teacher he did last year. Same classroom. Same number 23. Max was the first in line. He always has his throw up bin and either something star wars or some aircraft. Today was an aircraft.
Occasionally people would stop and say Hi to Max. Most of the time, Max looked away or looked down. Max doesn’t look at people very often. The second shot is Max with his teacher, Mrs. Strurt. She is so amazing with Max.
Then the other kids began to arrive. A number of the boys from last year are in Max’s class again this year. A few of them stopped by to say Hi.
You could tell Max wasn’t comfortable and probably had a bit of sensory overload. Max’s parents sensed it and decided that it would be best to go in the classroom to drop off Max’s supplies and then head to Children’s Hospital transfusion clinic, for his last day of IV chemo and platelet transfusion.
Before leaving, Max needed to take some pills. They’re supposed to dissolve under his tongue and Andy told me that they don’t taste good.
Max was headed out the door…his first day of school done, before the bell even rang. As everyone was headed in, Max was headed out. Today is Max’s last day of IV chemo (for this current round / combination) and tomorrow, he should be starting oral chemo.
For those of you that don’t make it to Max’s lab results (on his blog), last week, Max had a CT scan because of severe abdominal pain. Mom and Dad thought it might be appendicitis, but when the CT came back, it showed an enlarged liver with many spots of new disease in the liver, as well as new disease in his abdomen. When I spoke with Melissa last night, to figure out the details about shooting Max this morning, she wasn’t sure if Max would make it to school at all because he’s been having so much abdominal pain. Even though Max’s first day of school was only about 15 minutes long, I was so happy that he was able to make it at all. If you’re the praying kind, please say some prayers for Max and his family! And please share your thoughts and support with them.
Previous post / Next post