Wednesday, August 20th, 2008 by Deb Schwedhelm
I met Max and family in Del Mar for music on the greens tonight. The place was packed with people, listening to a band playing. Andy brought Max and one of his friends, Jack, and Melis brought Nick and Hannah and one of her friends.
I brought Max a couple bags of Pokemon cards that my oldest no longer wanted. He seemed happy to get them but not very talkative. Max stayed in his jogging stroller, while Jack sat on the blanket…both boys looking at the cards, but neither saying a word.
The entire time I was there, I didn’t see Max and Jack say a word to one another. I tried talking to Max (just a bit) and he said, please stop talking to me. Of course, I stopped.
Then Andy brought out a syringe and told Max that it was time. Max lifted his shirt and started injecting the syringe of medicine into his g-tube. This medicine is part of Max’s current treatment roadmap. As Andy recently posted, this is likely their last shot at stopping Max’s neuroblastoma. Those words kept running through my head as I photographed Max injecting the medicine into his body…hoping that this combination of drugs / chemo will be the magic bullet to wound this currently incurable cancer and buy them time, time to live and hopefully some day find a cure.
Pretty much the entire time there, Max was upset and just wanted to be left alone. With Mom’s approval, Hannah ended up asking Jack, Max’s friend, if he wanted to play with her and off they went. Max just stayed covered with his blanket, with his head down.
It was only about 20 or 30 minutes after arriving that they decided it would be best to take Max back home. Andy left with Max, while Melis stayed with the other kids. One thing that was so very evident tonight is just how hard Max’s fight against neuroblastoma is on Max…and his family.
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